In 2007, my nephew, Zach Pickard was diagnosed with Progeria, a rare, fatal genetic condition characterized by an appearance of accelerated aging in children caused by a mutation in the gene called LMNA. Progeria signs include growth failure, loss of body fat and hair, aged-looking skin, stiffness of joints, hip dislocation, generalized atherosclerosis, heart disease and stroke. Children with Progeria die of atherosclerosis (heart disease) at an average age of thirteen years.
Naturally my family was devastated when we learned about Zach's condition. Our only hope is that we can help the Progeria Research Foundation (PRF) find a possible cure for this disease. Currently Zach is enrolled in PRF's triple drug trial consisting of 45 children from 19 different countries and three drugs aimed at focusing on different parts of the disease. Finding a cure for Progeria could mean finding a cure for heart disease, the number one killer in the world. Last year, PRF asked us to open our own Kentucky PRF Chapter because of our extensive fundraising efforts. Because Progeria is so rare it's truly up to the individual families of the children afflicted with the disease to raise enough money to perform the drug trials and Progeria research.
Zach has been featured in the State-Journal, Herald Leader, on LEX 18 News, Wave 3 News and WLKY Louisville. He has also appeared on TLC's special 6 Going on 60 and our family with the help of local communities has risen over $100,000 in the past two years and all this stemmed from a touching article in the State Journal and a Pancake Breakfast/Silent Auction at Applebee's of Frankfort.
I am hoping that you can help us in our continued effort to find a cure for Progeria by attending our second Frankfort Pancake Breakfast and Silent Auction on March 6th at Applebee's from 8-10 am. Tickets are $5 and can be purchased at the door. If you would like to donate an item, contact me by email and I will be happy to pick it from your business or if you prefer to give monetary funds they can be mailed to the address below. Thank you for your help in finding a possible cure for Zach and the others living with Progeria.
101 Calvert Ln.
Frankfort KY 40601