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He's one in eight millionMarch 12, 2008
Photo By State Journal/Kelly Mackey
One-year-old Zach Pickard is surrounded by his supportive family including grandmother, Kim Pickard, left, cousin, Seth Pickard, aunt, Kristin Pickard, mother, Tina Pickard, father, Brandon Pickard, uncle, Rusty Pickard, and sister, Brittany Banahan. Zach was recently diagnosed with Progeria, which has only been identified in 100 cases. Zach looks like any other baby. At 13 months, he's learning to walk, stumbling clumsily across his living room floor. He says words like "mama" and "papa" and laughs when his parents make funny faces. But three months ago, his parents, Brandon (Bill) and Tina Pickard of Lexington, learned that Zach isn't like other children. He was diagnosed with Hutchinson-Gilford Progeria Syndrome, a fatal disease characterized by a rapid aging process. Now Zach's aunt, Kristin Pickard, who works at the downtown Farmers Bank, along with help from her mother-in-law, Kim Pickard, has organized a pancake breakfast and silent auction from 8 to 10 a.m. Saturday at the Frankfort Applebee's to increase awareness about the disease and raise money for the Progeria Research Foundation. "The disease isn't as well-known as others, so they don't receive enough donations," Kristen Pickard said. "It's too rare and too few people know of it." When Zach was 2 months old, his parents took him to a doctor for unexplained skin bumps. This began a nine-month ordeal of going from doctor to doctor, searching for answers to Zach's unique symptoms. Dr. Ann Lucky, a pediatric dermatologist in Cincinnati, was the first physician to suggest Zach be tested for Progeria. Like most physicians, Lucky had never diagnosed the disease before, but she believed
"At first we didn't believe this was possible because of the rarity of the syndrome," Tina Pickard said. "But I knew by the end of the day, after looking at information on the Internet, that this is what he had."
"We were shocked initially," Tina Pickard said. But then came acceptance. "We realized God had chosen to bless us with this baby. And we are honored. Truly honored," Tina Pickard said. Hutchinson-Gilford Progeria Syndrome is a disease that accelerates the aging process when the child is 18-24 months old. Children with this syndrome die of heart disease at an average age of 13 after aging at a rate six to eight times faster than an average person. Approximately 100 cases have been formally identified in medical history Because heart disease is the number one killer in America, finding a cure will not only help children like Zach, but it may provide keys for treating millions of adults with heart disease and stroke associated with the natural aging process. Researchers recently discovered the cause of Progeria in 2002. They believe it is caused by a mutation in the gene called LMNA, which makes the Lamin A protein. The defective Lamin A protein renders the nucleus of a cell unstable and that cellular instability appears to lead to the process of premature aging.
"Honestly, at the end of the day we have to be able to look at ourselves in the mirror and say that we've made a difference," Tina Pickard said. "We want to educate people and create awareness within the community that this foundation needs money." Zach's sister, Brittany Banahan, 15, is also helping raise awareness by setting up a Web site for her brother. Zach is young enough that today the physical symptoms aren't pronounced. However, as time passes he will begin to exhibit the recognizable traits of a child with Progeria: limited growth resulting in a short stature, hair loss, a small face, thin skin and a loss of body fat. Although children with Progeria tire more quickly, they can run just as fast, laugh just as hard and live life with the same enthusiasm as other children. They just have less time to do it.
"He yaks with strangers when we're in restaurants and he draws people to him," Tina Pickard said. "If you meet him you love him." Comments
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Next 10 Comments
Posted by illbedam April 24, 2008
I'm a long way from home right now, working on the road in ND. I keep up with my hometown on this website. I just want to say that I am very impressed with the way this family is dealing with adversity. I smiled when I read this article because even though they were faced with this devastating news they seem determined to make the best of it and enjoy this child and allow him to enjoy his life as well.
Posted by zach's aunt March 21, 2008
thank you all that came out and supported our breakfast. we had a wonderful turn out and great time. must not of been to bad of a day for a fundraiser, we raised over $3800 for the progeria foundtion.
Posted by trying March 18, 2008
Thanks, ema, at least one person can read, LOL.
Sparkie you are out of touch with reality, if you think there was anger and rage in my post. I didn't pass judgement on the poor child's condition. In fact I know quite well what he and his family are dealing with (and long before this article appeared). I stated a simple fact and people blow it out of proportion. And I provided good advice for further fundraisers. Something that this family, thanks to yours and other posts, are likely to ignore. If you think I lack compassion, that's your problem, but thanks for the good laugh.
Posted by ema March 17, 2008
trying - I don't think you're a bad person. I think you were misunderstood.
Posted by Vicki March 17, 2008
I read your story and am sure you will get a lot of people giving your suggestions-I am so sorry this has happened to ya all. Our son was healthy one day and now has epilepsy. We were desperate for a way to help and found a definite answer to prayer-We started using MANATECH vitamins and one of the products is called AMBROTOSE. Please consider looking into this and get with someone who sells the products-our son is now seizure free-and we believe with all of our hearts these products worked. The way we looked at it-anything is worth a try-and I am sure you all feel the same way-they are safe-and I am believing you will have great results-check out other testimonies-and please know--as a mom-I am praying and hoping the best for you and your baby!
Posted by Sparkie March 17, 2008
It is heart breaking that even during such a crisis in a family, you can feel the anger and rage in "tryings" statement. The point isn't about if you can make an event, or donate to a cause, but the freedom to stretch out your hand without judgment, and share the pain, and offer hope. This child is going to thrive because of the love that is surrounding him. That much is so obvious. What "trying" is doing is obviously getting "EGGED" by those statements, and scrambling the reality that this child needs everyone around him in this situation that are POSITIVE minded. God bless you all, and "trying"........ sounds like to me your heart is fried when it comes to compassion, warmth, and the ability to be giving beyond your own world. Your post was shameful. Pure and simple!
Posted by AMHoss March 17, 2008
Congrats! The Pickard Family and many friends put on a GREAT breakfast!! I am so proud of all those who put in alot of energy and time into something so great and it was a wonderful success! It was so great to spend time with Zach as well...it made donating time and money SOOO easy! God Bless.
Posted by kris10pickard March 15, 2008
Thank you so much to everyone who donated! We had a great event and raised approximately $4000 and have been recieving calls all day about mailing donations. Thank you so much from the Pickard family.
Posted by trying March 15, 2008
I never said I don't respect the cause. I have pointed out twice that it is a worthy cause. And a child should never have to go through something like that. I merely pointed out that the date was a bad choice. And yes, people do have other priorities and commitments on this particular day. Now you can bash me all you want, but I am 100% sure that more money could be made, if a more careful date would have been chosen. And I dare all of you, who bashed me to go and give at least $100 per person to the cause.
A piece of advice from somebody who has organized quite a few fundraisers. If you use the media to inform the public about fundraisers for causes like this, also open up a bank account for this particular cause. Have that information published as well. Then people, who cannot come to your fundraiser, have a way to give a donation at their leisure. Especially, if the day is jampacked with other non-related activities in and around town. Also, Applebees is right next to a stoplight. Have people stand there and collect spare change donation and inform them about the breakfast and how they can otherwise donate. Mmmh, yeah, now you can all go back to bashing me and telling me what a bad Christian I am. Too bad for you that I know better, and God knows better, too.
Posted by kris10pickard March 14, 2008
I really appreciate those who had nice things to say. It may not be your decision to come to the breakfast, but our family is fighting hard for Zach and you should respect that.
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